Aoife’s appeal for life-saving surgery

first_imgShannon Airport braced for a devastating blow TAGSClareCommunityEDSEhlers Danlos SyndromefundraisehealthSixmilebridgesupport Housing 37 Compulsory Purchase Orders issued as council takes action on derelict sites Previous articlePatients in Limerick encouraged to take part in national surveyNext articleUS Meeting Planners get a taste of the Shannon Region as Limerick is promoted as a destination city Bernie Englishhttp://www.limerickpost.ieBernie English has been working as a journalist in national and local media for more than thirty years. She worked as a staff journalist with the Irish Press and Evening Press before moving to Clare. She has worked as a freelance for all of the national newspaper titles and a staff journalist in Limerick, helping to launch the Limerick edition of The Evening Echo. Bernie was involved in the launch of The Clare People where she was responsible for business and industry news. Aoife’s condition is such that she can’t travel in a car without special support.SUE Sage’s heart breaks when her 14-year old daughter, Aoife says “I’m not living mam. I’m existing”.The bright young teenager is practically bed-bound and housebound because she is living in danger of dislocating her neck, which could paralyse or even kill her.Sign up for the weekly Limerick Post newsletter Sign Up Aoife suffers from the debilitating genetic condition Ehlers-Danlos Syndrome (EDS) which leaves her joints liable to dislocation and she suffers constant pain.To take her out of immediate life-threatening danger, Aoife, from Sixmilebridge, needs surgery which can only be performed in Barcelona at a cost of €100,000.“Aoife missed so much primary school and while she went to secondary school for a few weeks, she couldn’t continue. She is socially isolated, she has no friends she’s in pain all the time and she is all but housebound.“If she can get out of bed and come downstairs for an hour a day, that is a good day,” Sue told the Limerick Post.Aoife’s three siblings, Aine (21) Eoin (16) and Aodhán (10) all suffer from the condition, but Aoife is the only one so seriously impacted.“She suffers so much and yet she is the most undemanding child. We had no option but to go to the UK first because there are no specialists in EDS here in Ireland. The only place she can have this surgery is in Barcelona”.The family have to raise the money as the specialist surgery can only be performed in the private clinic in Barcelona, ruling out the Treatment Abroad fund and the Cross “Border Treatment fund which requires that patients pay up front and, even then, only some of the cost may be refunded.Mum Sue and dad Declan have to rely on family friends and community to help them take Aoife to the UK and now to get her to Spain for this vital surgery.“This is our child’s life. She has no quality of life and, apart from taking her out of immediate danger, it won’t cure the EDS. The best we can hope for is that she can get some relief,” said Sue.There is a fundraiser for Aoife this Saturday, June 8, when DJ James Sexton will take revellers back to the ’80′s, with music, finger food and spot prizes in the Oakwood Hotel in Shannon 8.30pm, tickets €20.Anyone who would like to help Aoife can log on to NewsCommunityHealthAoife’s appeal for life-saving surgeryBy Bernie English – May 31, 2018 1473 Patrickswell women get to the heart of the matter Linkedin Twitter Printcenter_img Population of Mid West region increased by more than 3,000 in past year Email RELATED ARTICLESMORE FROM AUTHOR Facebook WhatsApp Is Aer Lingus taking flight from Shannon? Unstoppable Sean shows that all things are possible Advertisementlast_img read more

Harvard researchers now have borrowing privileges at twelve other universities’ libraries

first_imgResearch on the go for Harvard faculty, students, and staff just got a little bit easier: they can now check out library resources from 12 partner university libraries while traveling and even bring them home. With the launch of Borrow Direct Plus, patrons affiliated with a Borrow Direct partner (and Duke University) can visit their libraries and borrow items in person, increasing convenience, eliminating some shipping fees, and supporting environmental sustainability.The Borrow Direct network was launched in 1999 to provide access to library materials by mail. “We are thrilled to be collaborating with this group of institutions to provide greater access to patrons while reducing operational and environmental costs,” said Ann-Marie Costa, head of Access Administrative Operations. “It’s a win-win.”last_img read more

5 themes – Conversations with CU leaders

first_imgBased on calls we have received over the last month, there is no doubt credit union leaders believe our business will be forever changed after COVID-19.The thoughts these leaders shared with us can generally be categorized into 5 different themes:Out of Crises come Opportunity.  In the true spirit of people helping people, examples abound of credit unions reaching out to help their members in need, such as:Mortgage deferral assistanceWork reduction loansDeferred student loans continue reading » ShareShareSharePrintMailGooglePinterestDiggRedditStumbleuponDeliciousBufferTumblrlast_img read more

Men’s basketball: Badgers say goodbye to 2017 seniors with 66-49 win over rival Minnesota

first_imgThe University of Wisconsin’s men’s basketball rebounded in a major way as the 2017 seniors lead the Badgers to a 66-49 finish over rival University of Minnesota, Twin Cities in a critical game with postseason seeds at stake.Minnesota (23-8, 11-7 Big Ten) and Wisconsin (23-8, 12-6 Big Ten) were locked in a tie for third place in the Big Ten standings with the No. 2 seed in the conference tournament on the line after No. 16 Purdue downed Northwestern 69-65 in West Lafayette.While both teams came into Sunday’s Border Battle boasting identical conference records, Wisconsin and Minnesota had been heading in completely opposite directions during the month of February.The Badgers had dropped five of their last six games, and came crawling into the Kohl Center for the season finale on the tail end of a three-game losing streak. On the other hand, the Gophers were looking to make Wisconsin the next name on their eight-game winning streak list.Men’s basketball: Wisconsin’s strong second-half makes Senior Day sweet as UW defeats MinnesotaFor one of the winningest classes in University of Wisconsin men’s basketball program history, Sunday’s 66-49 win over Minnesota on Read…Wisconsin Player of the Game: Nigel HayesWisconsin’s senior force showed off in the early minutes of Sunday’s season finale. After senior guard Zak Showalter opened the Badgers’ offensive attack with a 3-pointer, Nigel Hayes followed suit by scoring the team’s next 5 consecutive points.Hayes was the driving force for the majority of the second half, and certainly turned the tide for the Badgers down the stretch with key buckets when his team needed them most. The fourth-leading scorer in Wisconsin history ended his final home appearance with 12 points on 5-for-10 shooting, along with six rebounds and three assists.Minnesota Player of the Game: Nate MasonGophers junior guard Nate Mason was a large part of the reason why Minnesota was able to take a 2-point lead into the half Sunday. Mason shot 50 percent from the floor with a game-high 11 points in the first 20 minutes.Even as his starting teammates began riding the pine thanks to foul trouble, the veteran scoring threat put up a valiant effort to keep Minnesota in the game late in the second half as he Badgers started to run away with it. Mason put up 17 points – tied for the game-high total with Bronson Koenig – and four rebounds the season finale.Unsung Hero: Ethan HappDespite the senior push in the second half that gave Wisconsin the edge, it was sophomore Ethan Happ who towed the line in the first half. Amid the lights and celebration of his senior teammates, Happ took control of the first half for the Badgers after the Wisconsin offense fell off a cliff.With just under eight minutes remaining in the half, Wisconsin was shooting an abysmal 25 percent from the floor (5-for-20), and 14 percent from three (1-for-7). Happ added seven rebounds and three assists in the first half, carrying the Badgers’ veteran core until senior forward Vitto Brown stepped into a three ball to bring UW within 1 point of the Gophers at the six-minute mark.As Happ’s veteran teammates finally came to life on the offensive end during the second half, his offensive production leveled and he finished the night with nine points, 13 rebounds and five assists.Honorable Mention: Vitto BrownThe senior starter brough six rebounds and three assists to the table. The timing and reaction to both of Brown’s two buckets unleashed an incredibly energizing wave of cheers from the fans at critical moments in the game.“He was active, he smiled, he was having fun, he was enjoying it,” Wisconsin head coach Greg Gard said. “He ran the floor in transition, he was really engaged, and everybody brought energy to it [the team effort]. Just a terrific team win and I’m happy for Vitto.”Struggling from beyond the arc in the last few games, Brown stepped into a 3-pointer and nailed it (3-for-13 in last 13 attempts) after missing his first two to bring the Badgers within one point of the Gophers late in the first half.Brown’s shot brought a nervous Kohl Center to life as the arena erupted in cheers and Minnesota head coach Rick Pitino was forced to call for timeout.Men’s basketball: Bohannon blood stuns No. 22 Wisconsin as UW blows late 9-point leadIn the end, it was familiar blood that did the University of Wisconsin men’s basketball team in. Jason and Zach Read…Turning pointDespite the Badgers 18-2 run in the early moments of the second half, Minnesota quietly cut the lead back to only six points at 51-46 late in the second. But at the 3:30 mark, Wisconsin’s Hayes got a contested turnaround, one-hander to fall from just outside the paint as the referee signaled for an and-one foul. The bucket gave the Badgers breathing room with a double-digit, 55-45 lead as the crowd roared in support behind the home team.When you knew it was overThe game may have been all but decided after watching Koenig rattle home a deep triple to give the Badgers a 13-point lead with just more than three minutes remaining, but the game was over after the senior guard nailed two more 3-pointers to end the game on back-to-back-to-back bombs from beyond the arc.“He knows he’s a good shooter, and good shooters – even through tough times – have to maintain that confidence,” Gard said.With 3:04 remaining, Koenig was shooting 2-for-5 from beyond the arc with 8 points. Less than 68 seconds later, Koenig was the Badgers leading scorer (17 points) and shooting 62.5 percent from downtown.“He’s continued to grow and become a better leader as he’s gone through his career here,” Gard said.Koenig broke the school record for most made 3-pointers (242) against Ohio State last week during a 27-point performance, and climbed to 17th on UW’s all-time individual scoring list.QuotableWisconsin head coach Greg Gard“The second half, I thought we were terrific at times. The grittiness, the toughness, that was us.”“I’m happy for our seniors because they really rallied together to get through this.”“We talked about being more aggressive in transition, but defensively I thought that was as good as we’ve been in a long time.”“Countless contributions from everybody, it was fun to watch.”Minnesota head coach Richard Pitino“I thought we did not play an intelligent game today.”“It was tough to get a flow offensively, I think from everybody.”Bronson Koenig“I thought we had more fun in this game than we’ve had in a long time.”“I just told myself to keep staying aggressive, to keep shooting. I mean I guess that’s just what I do, I close games out,” Koenig said with a chuckle and a smile.Nigel Hayes“It’s good to come out with this win, but it shows how good of a team we are. We lost nearly every damn game in February and we finished second [in the Big Ten regular season standings].”Vitto Brown“We knew if we kept playing the same kind of defense that we did during that losing streak, then the streak would have continued.”“We just never gave up on each other when we were playing like trash and garbage, respectfully.”Emily Sachs/The Badger Heraldlast_img read more